Open Humans Foundation
The Open Humans Foundation is a 501(c)(3) nonprofit organization dedicated to making a wide spectrum of data about humans accessible to increase biological literacy and improve human health.
Programs
Open Humans
Open Humans is a project and community that enables individuals to connect their data with research and citizen science.
Personal Genome Project
The Open Humans Foundation helps support the Global Network of Personal Genome Projects. These studies are dedicated to using an ethical "open consent" format to create public resources of genome data, health information, and cell lines.
GET Conference
Since 2010, we've also organized the GET Conference, an annual gathering that brings together leading thinkers to discuss how we measure and understand people and their traits. Recent years have also featured GET Labs, where researchers bring their studies to recruit and work with participants, and the GETy Awards, honoring excellence in participant-centered research.
Team
Staff
Madeleine Ball
Executive Director
Jason Bobe
Advisor
Executive Director Emeritus
Board of Directors
Karien Bezuidenhout
John Cammack
Treasurer
George Church
President
Juan Enriquez
Steven Keating
Michelle Meyer
Secretary
Donate
The Open Humans Foundation is a registered 501(c)(3) nonprofit corporation. Donations help support and expand our programs, furthering our mission.
(Note: Our nonprofit was formerly named "PersonalGenomes.org", and this is still reflected in some of our current materials.)
Ways to Give
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Online Donation
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Personal Check payable to:
Open Humans Foundation
423 Brookline Avenue, #323
Boston MA 02215-5410*Double your contribution by participating in your company's matching gift program!
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Charitable Stock Donation
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Corporate Giving
For further information about charitable giving, please contact us at info@openhumansfoundation.org.
Tax Information
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Federal Employer Identification Number (FEIN): 26-2973607
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IRS Determination Letter (2008): PersonalGenomes.org 501(c)(3) (PDF)
IRS Affirmation Letter (2017): Open Humans Foundation 501(c)(3) (PDF)
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Tax Returns
2008 Form 990
2009 Form 990
2010 Form 990
2011 Form 990
2012 Form 990
2013 Form 990
2014 Form 990
2015 Form 990
Contact Us
(Note: Our nonprofit was formerly named "PersonalGenomes.org", and this is still reflected in some of our current materials.)
Email is our preferred contact method! You can email us at info@openhumansfoundation.org
Open Humans Foundation
423 Brookline Avenue, #323
Boston MA 02215-5410